Patient Insights & Reports

The Launch Event for the "2026 China HoFH Patient Survival Status Survey Report" was successfully held in Beijing!

2026-09-21
The Launch Event for the "2026 China HoFH Patient Survival Status Survey Report" was successfully held in Beijing! With real data as a bridge,Let the plight of 122 families be seenOn September 18,2...

Looking Back at 2020, The Growth Journey of Homy Grain

2026-08-28
This year has been full of growth and challenges for Hongmili!This year, Hongmili has been actively serving the familial hypercholesterolemia (FH) community by organizing public welfare activities,...

[2021 Homy Grain Annual Work Report] Staying true to our original aspiration and forging ahead!

2026-08-28
Time flies, and the seasons flow by.2021 is about to come to an end,and Hongmili has been established for over a year.As the year draws to a close, it is a good time to look back and look forward.S...

Homy 2022 Annual Work Report

2026-08-28
As the seasons change and years pass, at the end of the year, we look back and look forward. We invite you to join us in stepping into Red Rice's 2022... 1. Project Section 01 FH Patient Information R

[Homy 2023 Annual Work Report] Warm-hearted, humble, patient, dedicated, and conscientious.

2026-08-28
At the beginning of the new year,Everything is renewed.Capturing TimeCounting the precious things.We invite you to join us.Looking back at Red Rice Grain's 2023...Chapter 1: Heartwarming Science Po...

Homy FH Patient Organization 2024 Annual Work Summary

2026-08-28
When it comes to the story of Red Rice, another year has passed as we pick up the pen. We always marvel at how quickly time flies, and we always want to look back on the bits and pieces of this year.

Homy Grain Mutual Aid Home 2025 Annual Work Summary

2026-08-28
A new year begins, and everything is renewed.HAPPY NEW YEARAs the year draws to a close, it's time to look back and look forward.Here, we cordially invite you to pause and look back with us.Embark ...

Patient Stories | 28 Years Old, 6 Heart Stents: My Life-and-Death Battle with a Rare Disease

2026-08-27
“I am Wang Xin, and everyone can also call me Shizi.This year I am 28 years old, and this is my 25th year fighting against a rare disease — Homozygous Familial Hypercholesterolemia (HoFH).From anxi...

HoFH Patient Story | From “Being 'Harvested'” to Gene Therapy: It Took Me 37 Years

2026-08-27
“My name is Shanshan, I am 38 years old, and I am a...homozygoteFamilial hypercholesterolemia(HoFH) patients。From a worldly perspective, my life has been quite bumpy.I've had xanthoma since I was e...

HoFH Patient Stories | At 27, with three blocked vessels, I never knew what “illness” I had?

2026-08-27
Xiao Yang is a HoFH patient from the Red Rice Mutual Aid Community. His experience reflects the common dilemmas faced by rare disease patients: early signs being misread, a lack of standardized diagno

Patient Stories | Five Years After Open-Heart Bypass Surgery, My Blood Vessels Narrowed Again

2026-08-27
“Maintaining a calm and optimistic mindset is just as important as treatment.It's even more important than treatment.”I was told my cholesterol was high during a routine check-up in the village in ...

My Eight-Year Journey of Exploration as Someone with Elevated Lipoprotein(a) (Lp(a)): I Tried Every

2026-08-27
My name is Yunfei, and I'm 35 years old. With a background in science and engineering, I have a natural sensitivity to numbers and a strong interest in health and nutrition. I once read a nutrition bo

Patient Stories | Forty Years of Illness, Two Heart Surgeries, Before I Knew I Was a Rare Disease Pa

2026-08-27
“ When I learned that I had a rare diseaseI am 40 years old.”I am a homozygous familial hypercholesterolemia patient, and it wasn't until 2024 that I learned the heart problem that had plagued me f...

Born Extraordinary: Cholesterol Seven Times Over the Limit, Truth Revealed Only 25 Years Later

2026-08-27
Original • Rare Diseases • Heartwarming Science PopularizationThe 66 ExpectChina's first batch of rare disease catalogs:46Xiao Lin, who lives in JiangsuFrom birth, yellowish growths began to appea...